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Connor's story

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Connor was diagnosed with CF
at 3 months old.

 

As an 18 year old, he has spent his
entirelife courageously battling CF
and its many complications.

Connor is now 18 years old. He was diagnosed at 3 months old with cystic fibrosis. His early years were spent doing many breathing treatments and chest physical therapy. As the years passed, his profound fatigue was quite a puzzle. He was then diagnosed with
adrenal insufficiency. The intake of daily meds rose to approximately 40 per day, just to try to stay healthy.

​

As a 9-year old he was diagnosed with CF-related liver disease. More meds were added to the list. Upon turning 12 he was then
diagnosed with CF-related diabetes and was insulin-dependent, needing up to four shots a day. After being on such high doses of
steroids to keep his lungs healthy, his knees and hips were affected. In the future there is a strong possibility that Connor will need
knee replacements.

​

CF-related liver disease proved to be bigger than any of the doctors thought it would be and in 2010, Connor was the recipient
of a living donor liver transplant. The need for anti-rejection medication is needed everyday for the rest of his life.

​

He continues with the many treatments, medications and chest physical therapy, each done with a smile and a gratefulness to
God to be alive!

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